Elliott was diagnosed with Homocystinuria, or HCU, at 2 years old after suffering a series of blood clots throughout the brain. Once ...
I began my last semester of college excited for the year ahead, doing normal things for a college senior, thinking about life after ...
Having coverage for medical nutrition would mean the world to our family. Instead of feeling like I have to creatively figure out how ...
Six years ago my son, Jacob, was born with a rare metabolic condition that requires detailed, daily medical care, including the use of ...
Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance ...
Our daughter Callaway requires specialized formula every single day to stay alive!! While our insurance covers a portion of the ...
Medical foods coverage would allow my son, who has Complex 1 Deficiency and Pyruvate Dehydrogenase Deficiency, to use his Social ...
My son Alex was born with PKU. He is currently 9 months old and requires 6 ounces of his PKU formula. As he grows this is most likely ...
I am a voting 48 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...
My daughter’s formula is currently covered. This formula allows my daughter’s brain and body to remain healthy. It allows her to ...
Emmalyn graced us with her presence 10 and 1/2 years ago at 35 weeks gestation weighing in at 5 lbs, 7 ozs. and 18 inches long. Our ...
Having coverage for medical nutrition through TRICARE has meant everything to me and my family. 2 of my brothers and I were ...
My daughter, Brittany, was born with PKU and we were able to provide her with the nutritional products that she needed to avoid significant brain development problems. Unfortunately, that is not the case for all children and adults in the US.
The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...
Having coverage of these items would be such a relief! Trying to keep up with the strict diet and routine around administering ...
Having access to low protein nutrition and food is essential to my overall health but primarily my brain and cognitive function. ...
Employer plan claims that metabolic formula is considered food supplement / baby formula and is excluded from plan.
Not only helps us but all other families who need to provide safe calories for our children. Employer plan claims that metabolic ...
There are a lot of difficulties that come with having a metabolic disorder. Our society revolves around food, and daily ...
If we had coverage for Josephine’s medical nutrition it would be such a blessing to not only Josephine but to our family. ...
Not having to worry about paying for medical nutrition would be a huge relief to our family. NO family should have to pay for these ...
Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for ...
I’m Elizabeth and I have Classic PKU. When I was five my drs and parents a took me off the diet and formula. I was fine till age ...
Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it ...
I just want Lily Jo to be able go to school and eat lunch like the rest of the children. I want to know that once again someone ...
This is Eliot and he has PKU. With formula, low-protein foods and an incredible amount of discipline on his part, Eliot is a happy, ...
My name is Teresa Boyette I live in Kinston NC I was born overseas where nb knew bout pku tills American soldier discovered it.i ...