People with Inborn Errors of Metabolism and Conditions on the RUSP who rely on medical foods

Joseph

New York · Phenylketonuria (PKU)
Annual cost: $4200

I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...

Brittany

Maine · Phenylketonuria (PKU)

The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...

Kris

California · Phenylketonuria (PKU)

Having access to low protein nutrition and food is essential to my overall health but primarily my brain and cognitive function. ...

Ishaq, Age 5

3-Hydroxy-3-methyglutaric aciduria · Maryland
Annual cost: $3600

Not only helps us but all other families who need to provide safe calories for our children.  Employer plan claims that metabolic ...

Emeline

Maryland · Phenylketonuria (PKU)
Annual cost: $5400

Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for ...

Audrey, Age 12

Maryland · Tyrosinemia
Annual cost: $420

Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it ...

Lily Jo, Age 6

Michigan · Tyrosinemia
Annual cost: $7200

I just want Lily Jo to be able go to school and eat lunch like the rest of the children. I want to know that once again someone ...

Sarah

Connecticut · Phenylketonuria (PKU)
Annual cost: $300

At first my dad’s Connecticut Carpenters insurance refused to cover my condition so he took a job with the Milford Board of ...

Kendall

Maryland · Phenylketonuria (PKU)

My name is Kendall Temple Jr. and was born in 1966. I was one of every first people diagnosed with PKU in the state of Maryland. There ...