T, Age 5
EOSINOPHILIC DISORDERS · FPIES · TexasAnnual cost: $8400
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
Eosinophilic esophagitis (EoE) is an inflammatory condition in which eosinophils (a certain type of white blood cell) infiltrate the esophageal wall. This typically occurs in response to foods or aeroallergens. Typical symptoms include difficulty swallowing, pain, nausea, regurgitation, and vomiting. Over time, the disease can cause the esophagus to narrow (a stricture), which can result in food impaction and require emergency removal.
By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...
My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His ...
My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not ...
Being able to access medical formula is absolutely necessary for my family. My 10 year old son gets 1/3 of his nutrition from Neocate ...
We spent a long time working with my son’s doctors to make insurance understand how much he needed hypoallergenic formula. He was ...
I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one ...
Medicare always denying coverage, constant. Medicare is very poor. EOB’s need improvements. I have a son that needs medical ...
I began experiencing unusual gastrointestinal symptoms around 1990 which included severe stomach aches, bouts of diarrhea and frequent ...
Insurance won't cover my son's formula unless he's tube-fed.
The Medical Nutrition Equity Act would mean my 7 year old son could get proper nutrition he needs. He is currently 45lbs at 7.5 years ...
When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...
Tyler began getting sick at age 4 eating normal food. We went through three large healthcare institutions in NC where we live for ...
Our 8 yr old has been on EleCare/hypoallergenic formula since he was 9 months old. His first 3 years of life, he went from no safe ...
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...
Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...
Coverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Liam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
Medically necessary formula has given Caleb back his health, allowed him to continue to advance in sports and school. Not knowing if ...