People with EOSINOPHILIC DISORDERS who rely on medical foods

Eosinophilic esophagitis (EoE) is an inflammatory condition in which eosinophils (a certain type of white blood cell) infiltrate the esophageal wall. This typically occurs in response to foods or aeroallergens. Typical symptoms include difficulty swallowing, pain, nausea, regurgitation, and vomiting. Over time, the disease can cause the esophagus to narrow (a stricture), which can result in food impaction and require emergency removal.

Tessa

 EOSINOPHILIC DISORDERS · Utah

When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...

As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.

Vikram Christian, MD

 EOSINOPHILIC DISORDERS · Minnesota · Provider Stories

As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...

Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.

Dylan, Age 5

 EOSINOPHILIC DISORDERS · Ohio
Annual cost: $18000

Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...

Ben, Age 5

 EOSINOPHILIC DISORDERS · Indiana
Annual cost: $4800

Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...

A. Jay

 EOSINOPHILIC DISORDERS · Texas
Annual cost: $6000

It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will ...

Cade's Medical Nutrition costs are so great that the family often asks other family members to buy formula instead of birthday or Christmas gifts.

Cade

 EOSINOPHILIC DISORDERS · Georgia
Annual cost: $5520

Cade, who lives near Atlanta, GA, was diagnosed with a cow’s milk allergy around 5 months old after he developed a rash after ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.