EOSINOPHILIC DISORDERS

People with EOSINOPHILIC DISORDERS who rely on medical foods

Eosinophilic esophagitis (EoE) is an inflammatory condition in which eosinophils (a certain type of white blood cell) infiltrate the esophageal wall. This typically occurs in response to foods or aeroallergens. Typical symptoms include difficulty swallowing, pain, nausea, regurgitation, and vomiting. Over time, the disease can cause the esophagus to narrow (a stricture), which can result in food impaction and require emergency removal.

By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.

T, Age 5

EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400

My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...

Mayes, Age 4

EOSINOPHILIC DISORDERS · Texas
Annual cost: $7200

Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...

Armando, Age 2

EOSINOPHILIC DISORDERS · Florida
Annual cost: $18000

My son, Armando, struggled to grow and gain weight since birth. He would vomit daily and choke on foods once they were introduced. His ...

Bryleigh, Age 11

EOSINOPHILIC DISORDERS · Virginia

My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not ...

Rylan, Age 10

EOSINOPHILIC DISORDERS · Kentucky
Annual cost: $3600

Being able to access medical formula is absolutely necessary for my family. My 10 year old son gets 1/3 of his nutrition from Neocate ...

Sawyer, Age 2

EOSINOPHILIC DISORDERS · Missouri
Annual cost: $540

We spent a long time working with my son’s doctors to make insurance understand how much he needed hypoallergenic formula. He was ...

Shane

EOSINOPHILIC DISORDERS · Maryland
Annual cost: $42000

I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one ...

Sebastian, Age 25

EOSINOPHILIC DISORDERS · Pennsylvania

Medicare always denying coverage, constant. Medicare is very poor. EOB’s need improvements. I have a son that needs medical ...

Jeffrey

EOSINOPHILIC DISORDERS · Minnesota

I began experiencing unusual gastrointestinal symptoms around 1990 which included severe stomach aches, bouts of diarrhea and frequent ...

Insurance won't cover my son's formula unless he's tube-fed.

Elijah, Age 7

EOSINOPHILIC DISORDERS · Texas
Annual cost: $3600

The Medical Nutrition Equity Act would mean my 7 year old son could get proper nutrition he needs. He is currently 45lbs at 7.5 years ...

Tessa

EOSINOPHILIC DISORDERS · Utah

When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...

Tyler, Age 7

EOSINOPHILIC DISORDERS · North Carolina
Annual cost: $14400

Tyler began getting sick at age 4 eating normal food. We went through three large healthcare institutions in NC where we live for ...

Evan, Age 8

EOSINOPHILIC DISORDERS · Illinois
Annual cost: $7200

Our 8 yr old has been on EleCare/hypoallergenic formula since he was 9 months old. His first 3 years of life, he went from no safe ...

As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.