Tessa
EOSINOPHILIC DISORDERS · UtahWhen I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.
Vikram Christian, MD
EOSINOPHILIC DISORDERS · Minnesota · Provider StoriesAs a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...
Jeremiah, Age 7
EOSINOPHILIC DISORDERS · West VirginiaOur family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
Lillian, Age 2
EOSINOPHILIC DISORDERS · VirginiaAnnual cost: $6600
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
Marcella, Age 15
EOSINOPHILIC DISORDERS · OklahomaAnnual cost: $4320
Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...
Cody, Age 6
EOSINOPHILIC DISORDERS · OhioCoverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Liam, Age 5
EOSINOPHILIC DISORDERS · NevadaLiam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...
Avery, Age 3
EOSINOPHILIC DISORDERS · FPIES · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New YorkAnnual cost: $2700
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
Walker, Age 5
EOSINOPHILIC DISORDERS · GeorgiaAnnual cost: $3000
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Dylan, Age 5
EOSINOPHILIC DISORDERS · OhioAnnual cost: $18000
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
April, Age 17
EOSINOPHILIC DISORDERS · OregonAnnual cost: $12000
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
Remington, Age 18
EOSINOPHILIC DISORDERS · FloridaAnnual cost: $25200
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
Caleb, Age 13
EOSINOPHILIC DISORDERS · MassachusettsAnnual cost: $6000
Medically necessary formula has given Caleb back his health, allowed him to continue to advance in sports and school. Not knowing if ...
Ben, Age 5
EOSINOPHILIC DISORDERS · IndianaAnnual cost: $4800
Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...
Alexander, Age 23
California · EOSINOPHILIC DISORDERSAnnual cost: $4800
My son has eosinophilic gastritis and esophagitis. His foods are very limited and he basically lives off chicken breast and rice. Even ...
Owen, Age 2
Arizona · EOSINOPHILIC DISORDERS · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteinsAnnual cost: $10200
Our journey begin in January 2018. Owen was 11 months old and went into anaphylactic shock due to peanut butter. This was just the tip ...
Lyndsee, Age 13
EOSINOPHILIC DISORDERS · North CarolinaAnnual cost: $20400
My daughter, Lyndsee, was diagnosed in January 2016 with a rare disease, eosinophilic esophagitis. Therefore, she has to live on a ...
A. Jay
EOSINOPHILIC DISORDERS · TexasAnnual cost: $6000
It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will ...
Cade's Medical Nutrition costs are so great that the family often asks other family members to buy formula instead of birthday or Christmas gifts.
Cade
EOSINOPHILIC DISORDERS · GeorgiaAnnual cost: $5520
Cade, who lives near Atlanta, GA, was diagnosed with a cow’s milk allergy around 5 months old after he developed a rash after ...