Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it affects my daughter’s growth and development is critical. For 12 years, we have cycled through and fought with various insurance providers to obtain this formula and it is truly never ending. She will need this formula, or something equivalent, for the rest of her life. Kaiser Permanente covers most of the cost for our medical formula, but ordering it is very difficult. They contract with CVS Coram, which subcontracts with Apria, which is notoriously bad about filling the order. It is always on back order and takes months to arrive.