Tyton, 9 months

Finding out your little one has a life changing condition at birth can be a whirlwind. Self Discipline is something that is mandatory for the survival of PKU. I often look at statistics of how many American families attempt to follow a diet plan and often result in failure as one in three children suffer from obesity. When I think of our little guy and how important it is for him to follow a structured diet, I don’t want financial limitations to be the reason of failure. My hope is to have his formula readily available to help him beat the odds and stay on diet. In doing so, he can have the full potential to live a life similar to his peers with little differences. For insurance, we have a commercial plan, high deductible health savings plan.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.