Insurance covers formula (so many cans a month) and also covers up to $5000 of food during the fiscal year July-April. If during the few months we cannot order food and we run out is when i have to pay out of pocket for food. Some companies will not let you order some foods (snacks) . Typically the foods we can find in the stores we cannot order which is where out of pocket expenses come in. Having medical nutrition coverage would mean so much to me and my family. My son who is 7 has PKU and currently has Masshealth for insurance. There was a couple months he went without insurance because there was some kind of glitch in the system and i had to fight to get insurance back for him. If we could have a coverage that we knew he would always have and not have to worry if this month he is covered and the next he is not would mean so much to me. It is stressful placing an order not knowing if it is going to go through or not. My son requires the food/formula to survive. I cannot run down the store to buy him the formula if I were to ever run out because insurance decided to stop covering him. It would take a lot of stress away if I knew he would always be covered and we could get what was needed for him to survive.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.