My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets older. I have no idea how we’ll be able to afford her formula if we buy a house or try to have a second child especially because if they have PKU as well, that would double the amount we’re spending on medical foods and formulas. I also have no idea how she’ll be able to afford it as an adult.
Currently, the price of formula feels like a prison right now. We can’t move or change jobs without fear of losing the little coverage we have. We have been stretching the medical food samples we received so thin because we just can’t afford to buy anymore. Coverage would give us the freedom we need to be a family.