Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the diet while trying to afford rent, utilities, tuition, health insurance, other medication, car insurance and other bills. Not to long after graduating I suffered a blood clot to the radial artery in my arm. I was hospitalized for a week and released with clear instructions to follow the diet. So I ask, how are you supposed to follow a diet you cannot afford. I somehow made too much to get any assistance. Now, many years later I do have coverage for medical formula but not food.
If the MNEA passed it would mean not having to choose between a roof over my head or taking care of my health. It would mean not having to fear for my future and the future of my child. I’m scared that improper access to healthcare/Nutrition could leave her without a mother. I’m also fearful I could be left a vegetable for my husband to have to take care of. The MNEA means no more fear for what could be if I don’t have access.