People with SBS who rely on medical foods

Short Bowel Syndrome (SBS), a type of intestinal failure, occurs when a significant portion of the intestine is absent. Most cases of SBS occur because a significant part of the intestine was surgically removed. Complications often include dehydration, malnutrition, electrolyte disturbances, vitamin deficiencies and poor growth; intravenous (TPN) and enteral therapy therefore need careful management to prevent these adverse outcomes

Noah, Age 6

New York · SBS
Annual cost: $12000

Coverage for medical foods would mean everything. We could pay our bills and not live paycheck to paycheck. Blended food is not ...

Colton, Age 6

Ohio · SBS
Annual cost: $16800

Colton is almost 7 years old. He was born at 30 weeks and lost 2/3 of his small bowel due to a mid-gut volvulus. He has been on an ...

Danielle, Age 3

Florida · SBS
Annual cost: $12000

Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.