The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am asking for your help. The MNEA would ensure that patients with PKU and other disorders have equal coverage for medical foods and formula in the US. Right now, there is no federal mandate for this, and it varies significantly state to state. Medical foods are literally needed for survival and to protect children from devastating neurological consequences. My daughter, Brittany, was born with PKU and we were able to provide her with the nutritional products that she needed to avoid significant brain development problems. Unfortunately, that is not the case for all children and adults in the US. This affects so many children, and not even just children with PKU. If you can help any way at all, it could make a huge difference for thousands of children.
- Riverlyn, Age 14 months