Levi, Age 2

His medical formula/milk costs about $130 a can. He goes through about 5 cans a month. Thankfully that’s currently covered under Medicaid. The other $180 is buying special low protein foods to live within his PKU prescribed diet. There is very little overlap with the other foods we regularly buy as a family that can be shared with him. I shudder to think what happens if/when we have to change insurers. Or what happens as he gets older and has a teenage boy appetite. Or becomes an adult and has to assume the huge burden of his own insurance/food bill. Having equality in medical food coverage would open a future for my son that currently seems so limited or pointed. It would relieve a tremendous financial weight for us now, and him later.

Other Utah residents who rely on medical foods

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.