Crohn’s Disease is a type of inflammatory bowel disease (IBD) characterized by inflammation of the gastrointestinal (GI) tract. This inflammation leads to abdominal pain, diarrhea, anemia, and poor growth in children. In many cases, fistulae (abnormal connections between two different organs or between the organ and skin), strictures (abnormally narrowing of the bowel), or abscesses develop. Crohn’s is a life-long condition and requires treatment with enteral nutrition, surgery, or medications.
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Jane’s formula cost out of pocket for EEN was approximately $300 per month. Her team of health care providers attempted to obtain insurance coverage but was denied even after appeals were attempted.
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...