Tommy, Age 19

My son is 100% IV nutrition/hydration dependent. Without insurance covering his very expensive weekly deliveries of life sustaining supplies, I do not know how we would be able to pay for it all. Without nutrition/hydration, my son would not survive

Read more

Katherine, RD

As a nutrition expert, it should be up to me, the family and the healthcare team to decide on how best to treat these children and if nutrition is the ideal treatment, then it should be included as part of the child’s covered treatments. It is frustrating to have to delay or change care if nutrition therapy is not covered. This can worsen illness and also cause undue stress and harm to the child and their family.

Read more

Tyler, MD from Idaho

I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often see patients whose digestive conditions mandate that they be on special diets or supplements and yet these diets cannot be

Read more

Caroline, RD

As a provider, I know what is best for these patients and when covered, the results (i.e. improved absorption, reduced eosinophils, improved growth and weight gain) are nothing short of incredible.

Read more

Colton, Age 6

Colton is almost 7 years old. He was born at 30 weeks and lost 2/3 of his small bowel due to a mid-gut volvulus. He has been on an elemental formula for malabsorption nearly 7 years because of having Short

Read more

Danielle, Age 3

At 1.5 years old she weighed 14 pounds and had g-tube surgery. She’s 3 now and has never eaten food.

Read more

Landyn, Age 8

Landyn has been blessed to have Medicaid as his medical costs over they years would have been impossible for our family to pay. When he was on his tube feedings the cost of the formula alone would have been prohibitive.

Read more

Diego, Age 9

Diego is a happy and thriving 9-year-old boy from Chicago, IL with a history of intestinal atresia. This means that part of his intestine did not develop before he was born. He was on total parenteral nutrition (TPN), nutrition through

Read more

Josiah

Josiah is an adorable baby boy who lives with his parents and older sister Middletown, New York. His story starts like that of most babies, with a relatively uneventful birth. Though Josiah was jaundiced (a yellowing of the eyes and

Read more
The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.