People with Medical or Surgical Condition of Malabsorption who rely on medical foods

As a nutrition expert, it should be up to me, the family and the healthcare team to decide on how best to treat these children and if nutrition is the ideal treatment, then it should be included as part of the child's covered treatments. It is frustrating to have to delay or change care if nutrition therapy is not covered. This can worsen illness and also cause undue stress and harm to the child and their family.

Katherine, RD

 California · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...

I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often see patients whose digestive conditions mandate that they be on special diets or supplements and yet these diets cannot be afforded.  A.B. is a 9-year-old boy who was born with a condition called ‘jejunal atresia.’ […]

Tyler, MD from Idaho

 Idaho · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often ...

As a provider, I know what is best for these patients and when covered, the results (i.e. improved absorption, reduced eosinophils, improved growth and weight gain) are nothing short of incredible.

Caroline, RD

 Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Inborn Errors of Metabolism and Conditions on the RUSP · Medical or Surgical Condition of Malabsorption · Minnesota · Provider Stories

I am a Registered Dietitian for GI disorders. I spend probably 10-20% of every week working on ordering medical foods for patients ...

Coverage for medical foods would mean everything.

Noah, Age 6

 New York · SBS
Annual cost: $12000

Coverage for medical foods would mean everything. We could pay our bills and not live paycheck to paycheck. Blended food is not ...

Colton, Age 6

 Ohio · SBS
Annual cost: $16800

Colton is almost 7 years old. He was born at 30 weeks and lost 2/3 of his small bowel due to a mid-gut volvulus. He has been on an ...

At 1.5 years old she weighed 14 pounds and had g-tube surgery. She's 3 now and has never eaten food.

Danielle, Age 3

 Florida · SBS
Annual cost: $12000

Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...