Hi, I am only 5 years old now and my parents struggle to provide the right food for me for my special diet. Coverage would mean now and when I get older I wouldnt have to pay for my food that keeps me healthy and for my formula and ALL THE OTHER PKU PEOPLE also to have coverage to stay healthy!!!! Our insurance has to have us call every 6 months to prove Saif is truly sick and 3 different out of network companies: his low protien foods, his formula, and his lab (to check amino acid levels) have to be changed to IN NETWORK…..EVERY 6 MONTHS JUST SO WE DONT HAVE TO PAY FULL AMOUNT.
- Donovan, Age 11 months
- Alexandria, Age 16