Our 25 year old daughter has always done really well with her PKU diet, especially throughout her schooling! We were able to receive her formula through Riley Hospital in Indiana until this year when we were informed that the state would no longer provide any formula! This has devastated our family and will put a real strain on our finances! Jessica feels like it is nearly impossible to live on her own with this added extra expense! She has even told her dad and I that she thinks at this point, she will choose not to have children due to this circumstance! We feel this is very unfair to her! In the 25 years of her life, no insurance has been willing to help us with this expense! This is a horrible burden to put on children with these disorders! Please help our kids!!!

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.