The amount of medical debt my family has had to trudge through, during my 43 years of living with PKU, has been financially crippling. I am grateful for medical foods, they allow me to be a valuable citizen, and member of society. However, it has been a huge financial burden. Having assurance, through law, that adequate coverage will be provided would allow our family to finally get out from under medical debt, and hope in a stable financial future! I used to pay much more out of pocket because our insurance would not cover my medical food for four years. We paid out of pocket in order to keep me healthy, and our babies healthy through my two pregnancies. We racked up medical dept upwards of 40,000 dollars. Thankfully, my husbands employee plan now covers my medical foods. But we always worry that something will change if they change the plan.
- Ashley, Utah Metabolic Nurse Practitioner
- Sue, Michigan Dietitian