As a nutrition expert, it should be up to me, the family and the healthcare team to decide on how best to treat these children and if nutrition is the ideal treatment, then it should be included as part of the child's covered treatments. It is frustrating to have to delay or change care if nutrition therapy is not covered. This can worsen illness and also cause undue stress and harm to the child and their family.
As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...
I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often see patients whose digestive conditions mandate that they be on special diets or supplements and yet these diets cannot be afforded. A.B. is a 9-year-old boy who was born with a condition called ‘jejunal atresia.’ […]
I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often ...
As a provider, I know what is best for these patients and when covered, the results (i.e. improved absorption, reduced eosinophils, improved growth and weight gain) are nothing short of incredible.
I am a Registered Dietitian for GI disorders. I spend probably 10-20% of every week working on ordering medical foods for patients ...
My husband has been trapped at that job his entire career because of the formula coverage for our son, that we can't afford to walk away from. We have 3.5 years before he ages out of coverage. It is $24,000/yr, for life. The one formula that works for him is not covered by medicaid in our state. We are almost retirement age and plan to work as long as we can to pay for formula.
Our 22 year old son is about to age out of coverage for his formula. He is allergic to everything, except this one formula and ...
When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...
Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
Medical Foods Coverage would greatly reduce our out of pocket cost especially at daycare, having to provide her formula for the next year will be hundreds to thousands of dollars.
Medical Foods Coverage would greatly reduce our out of pocket cost especially at daycare, having to provide her formula for the next ...
I have two daughters, three years and almost one month. We didn’t have a diagnosis for my oldest for 15 months. Her leg broke ...
I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...
Coverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...
Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Liam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
I am a city worker. The free insurance didn’t cover feeding tube supplies or formula. So I had to switch to an insurance I had to ...
Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergic to upwards of 40 foods. Even at the current ...
Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...