Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins

As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.

Vikram Christian, MD

As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...

Jeremiah, Age 7

EOSINOPHILIC DISORDERS · West Virginia

Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...

Nicole

EOSINOPHILIC GASTROINTESTINAL DISORDER (EGID) · Illinois
Annual cost: $5400

I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...

Lillian, Age 2

EOSINOPHILIC DISORDERS · Virginia
Annual cost: $6600

This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...

Marcella, Age 15

EOSINOPHILIC DISORDERS · Oklahoma
Annual cost: $4320

Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...

Cody, Age 6

EOSINOPHILIC DISORDERS · Ohio

Coverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...

Caroline, age 18 months

FPIES · Maryland
Annual cost: $9600

Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...

Elsie, Nearly 2

FPIES · Pennsylvania

Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...

Liam, Age 5

EOSINOPHILIC DISORDERS · Nevada

Liam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...

Avery, Age 3

EOSINOPHILIC DISORDERS · FPIES · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New York
Annual cost: $2700

Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...

KE, Age 16

Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New York

I am a city worker. The free insurance didn’t cover feeding tube supplies or formula. So I had to switch to an insurance I had to ...

Benjamin, Age 1

Florida · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins
Annual cost: $7920

Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...

My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.

Julian, Age 13

Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New Jersey
Annual cost: $9600

Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...

Walker, Age 5

EOSINOPHILIC DISORDERS · Georgia
Annual cost: $3000

We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...

Seton, Age 3

FPIES · Wisconsin
Annual cost: $3600

Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergric to upwards of 40 foods. Even at the current ...

Lincoln, Age 2

California · FPIES
Annual cost: $3600

Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...

Jamus, Age 9

FPIES · Nebraska
Annual cost: $1200

My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...

Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.

People with Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins who rely on medical foods

Vikram Christian, MD

Jeremiah, Age 7

Nicole

Lillian, Age 2

Marcella, Age 15

Cody, Age 6

Caroline, age 18 months

Elsie, Nearly 2

Liam, Age 5

Avery, Age 3

KE, Age 16

Benjamin, Age 1

Julian, Age 13

Walker, Age 5

Seton, Age 3

Lincoln, Age 2

Jamus, Age 9

Dylan, Age 5

Max, Age 17 months

April, Age 17

Remington, Age 18

James, Age 12

Caleb, Age 13

Ben, Age 5

Alexander, Age 23

People with Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins who rely on medical foods

Vikram Christian, MD

Jeremiah, Age 7

Nicole

Lillian, Age 2

Marcella, Age 15

Cody, Age 6

Caroline, age 18 months

Elsie, Nearly 2

Liam, Age 5

Avery, Age 3

KE, Age 16

Benjamin, Age 1

Julian, Age 13

Walker, Age 5

Seton, Age 3

Lincoln, Age 2

Jamus, Age 9

Dylan, Age 5

Max, Age 17 months

April, Age 17

Remington, Age 18

James, Age 12

Caleb, Age 13

Ben, Age 5

Alexander, Age 23

People with Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins who rely on medical foods