Tessa
EOSINOPHILIC DISORDERS · UtahWhen I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...
As a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the treatment of choice for these conditions. Insurance denial is particularly frustrating in the case of a motivated child who intends to consume the prescribed nutrition by mouth but is told that he/she would require a feeding tube to have this therapy covered by insurance.
Vikram Christian, MD
EOSINOPHILIC DISORDERS · Minnesota · Provider StoriesAs a pediatric gastroenterologist, I take care of children with diseases of the digestive tract. Medical nutrition is often the ...
Jeremiah, Age 7
EOSINOPHILIC DISORDERS · West VirginiaOur family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
Medical Foods Coverage would greatly reduce our out of pocket cost especially at daycare, having to provide her formula for the next year will be hundreds to thousands of dollars.
Lauren, 7 months
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · Minnesota · PendingAnnual cost: $3600
Medical Foods Coverage would greatly reduce our out of pocket cost especially at daycare, having to provide her formula for the next ...
Aliza (3) and Vayda (newborn)
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · MassachusettsAnnual cost: $8400
I have two daughters, three years and almost one month. We didn’t have a diagnosis for my oldest for 15 months. Her leg broke ...
Nicole
EOSINOPHILIC GASTROINTESTINAL DISORDER (EGID) · IllinoisAnnual cost: $5400
I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...
Lillian, Age 2
EOSINOPHILIC DISORDERS · VirginiaAnnual cost: $6600
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
Marcella, Age 15
EOSINOPHILIC DISORDERS · OklahomaAnnual cost: $4320
Marcella was diagnosed with multiple food allergies in 2016. She is allergic to soy, peanuts, tree nuts,fish, shellfish, along with a ...
Cody, Age 6
EOSINOPHILIC DISORDERS · OhioCoverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Caroline, age 18 months
FPIES · MarylandAnnual cost: $9600
Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...
Elsie, Nearly 2
FPIES · PennsylvaniaPrior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Liam, Age 5
EOSINOPHILIC DISORDERS · NevadaLiam has struggled with GI issues, food avoidance, and maintaining growth since he was born, but the issues intensified once we tried ...
Avery, Age 3
EOSINOPHILIC DISORDERS · FPIES · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New YorkAnnual cost: $2700
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
KE, Age 16
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New YorkI am a city worker. The free insurance didn’t cover feeding tube supplies or formula. So I had to switch to an insurance I had to ...
Benjamin, Age 1
Florida · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteinsAnnual cost: $7920
Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Julian, Age 13
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New JerseyAnnual cost: $9600
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
Walker, Age 5
EOSINOPHILIC DISORDERS · GeorgiaAnnual cost: $3000
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Seton, Age 3
FPIES · WisconsinAnnual cost: $3600
Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergic to upwards of 40 foods. Even at the current ...
Lincoln, Age 2
California · FPIESAnnual cost: $3600
Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...
Jamus, Age 9
FPIES · NebraskaAnnual cost: $1200
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Dylan, Age 5
EOSINOPHILIC DISORDERS · OhioAnnual cost: $18000
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
Max, Age 17 months
Colorado · FPIESAnnual cost: $3240
My son, Max was diagnosed with FPIES after I stopped breastfeeding and he started on milk-based formula and we started introducing ...
April, Age 17
EOSINOPHILIC DISORDERS · OregonAnnual cost: $12000
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
Remington, Age 18
EOSINOPHILIC DISORDERS · FloridaAnnual cost: $25200
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
James, Age 12
Alabama · EOSINOPHILIC GASTROINTESTINAL DISORDER (EGID)James DeLano is a 12-year-old boy who has lived his life with rare, chronic disease. As a young child, James was diagnosed with an ...