People with Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins who rely on medical foods

T, Age 5

EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400

My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...

Mayes, Age 4

EOSINOPHILIC DISORDERS · Texas
Annual cost: $7200

Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...

Gianna

FPIES · Michigan
Annual cost: $115212

Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...

Brooks, Age 9 monhts

FPIES · Illinois
Annual cost: $600

My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...

Ronan, Age 2

FPIES · Ohio
Annual cost: $9600

My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure ...

Katherine, Age 8

FPIES · Louisiana
Annual cost: $8400

Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. ...

Shane

EOSINOPHILIC DISORDERS · Maryland
Annual cost: $42000

I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one ...

Lucas, age 18 months

FPIES · New Jersey

While we are fortunate that wic and insurance cover Lucas’s formula because of his medical necessity as well as my persistence ...

Elijah, Age 7

EOSINOPHILIC DISORDERS · Texas
Annual cost: $3600

The Medical Nutrition Equity Act would mean my 7 year old son could get proper nutrition he needs. He is currently 45lbs at 7.5 years ...

Sutton, Age 4

FPIES · Texas
Annual cost: $10200

My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...

Eleanor, Age 7

California · FPIES

Nora was born tox positive to several drugs and social services moved her to my home to be with her bio sibling for adoption. She ...

Reynaldo

Florida · FPIES
Annual cost: $3864

My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his ...

Katherine, RD

California · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...

Tyler, MD from Idaho

Idaho · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often ...

Caroline, RD

Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Inborn Errors of Metabolism and Conditions on the RUSP · Medical or Surgical Condition of Malabsorption · Minnesota · Provider Stories

I am a Registered Dietitian for GI disorders. I spend probably 10-20% of every week working on ordering medical foods for patients ...

Justin, Age 22

Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Nebraska
Annual cost: $24000

Our 22 year old son is about to age out of coverage for his formula. He is allergic to everything, except this one formula and ...

Tessa

EOSINOPHILIC DISORDERS · Utah

When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...