People with Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins who rely on medical foods

T, Age 5

EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400

My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...

Mayes, Age 4

EOSINOPHILIC DISORDERS · Texas
Annual cost: $7200

Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...

Gianna

FPIES · Michigan
Annual cost: $115212

Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...

Brooks, Age 9 monhts

FPIES · Illinois
Annual cost: $600

My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...

Ronan, Age 2

FPIES · Ohio
Annual cost: $9600

My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure ...

Katherine, Age 8

FPIES · Louisiana
Annual cost: $8400

Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. ...

Shane

EOSINOPHILIC DISORDERS · Maryland
Annual cost: $42000

I have been on medical formula for my entire life. I am coming up on my 21st birthday and still have only been able to conquer one ...

Lucas, age 18 months

FPIES · New Jersey

While we are fortunate that wic and insurance cover Lucas’s formula because of his medical necessity as well as my persistence ...

Elijah, Age 7

EOSINOPHILIC DISORDERS · Texas
Annual cost: $3600

The Medical Nutrition Equity Act would mean my 7 year old son could get proper nutrition he needs. He is currently 45lbs at 7.5 years ...

Sutton, Age 4

FPIES · Texas
Annual cost: $10200

My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...

Eleanor, Age 7

California · FPIES

Nora was born tox positive to several drugs and social services moved her to my home to be with her bio sibling for adoption. She ...

Reynaldo

Florida · FPIES
Annual cost: $3864

My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his ...

Katherine, RD

California · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...

Tyler, MD from Idaho

Idaho · Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Medical or Surgical Condition of Malabsorption · Provider Stories

I am a pediatric gastroenterologist and treat children with a variety of digestive conditions that require medical nutrition. I often ...

Caroline, RD

Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Inborn Errors of Metabolism and Conditions on the RUSP · Medical or Surgical Condition of Malabsorption · Minnesota · Provider Stories

I am a Registered Dietitian for GI disorders. I spend probably 10-20% of every week working on ordering medical foods for patients ...

Justin, Age 22

Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins · Nebraska
Annual cost: $24000

Our 22 year old son is about to age out of coverage for his formula. He is allergic to everything, except this one formula and ...

Tessa

EOSINOPHILIC DISORDERS · Utah

When I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.