People with Immunoglobulin E & non-Im­mu­no­glob­u­lin E-mediated allergies to food proteins who rely on medical foods

Caroline, age 18 months

FPIES · Maryland
Annual cost: $9600

Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...

Elsie, Nearly 2

FPIES · Pennsylvania

Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...

Seton, Age 3

FPIES · Wisconsin
Annual cost: $3600

Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergric to upwards of 40 foods. Even at the current ...

Lincoln, Age 2

California · FPIES
Annual cost: $3600

Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...

Jamus, Age 9

FPIES · Nebraska
Annual cost: $1200

My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...

Dylan, Age 5

EOSINOPHILIC DISORDERS · Ohio
Annual cost: $18000

Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...

Max, Age 17 months

Colorado · FPIES
Annual cost: $3240

My son, Max was diagnosed with FPIES after I stopped breastfeeding and he started on milk-based formula and we started introducing ...

Ben, Age 5

EOSINOPHILIC DISORDERS · Indiana
Annual cost: $4800

Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...

A. Jay

EOSINOPHILIC DISORDERS · Texas
Annual cost: $6000

It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will ...

Sarah

FPIES · Georgia

Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...

Cade

EOSINOPHILIC DISORDERS · Georgia
Annual cost: $5520

Cade, who lives near Atlanta, GA, was diagnosed with a cow’s milk allergy around 5 months old after he developed a rash after ...

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.