When I moved to the West Coast by myself in 2014, I had to learn everything on my own like finding a clinic and handling coverage. I had insurance companies outright deny me coverage for my formula so much that I was actually forced to not drink formula for awhile. I was forced to move and change jobs frequently due to lack of coverage. A one point, I was a contractor through Google. Because the contracting company (not Google) was self-insured, I was denied coverage again. Despite always being a working individual with access to healthcare, there were many times I wasn’t able to get formula, and I hardly EVER got coverage for PKU food. Please don’t make other young adults like me have to suffer because insurance companies refuse to cover our medicine.
Even though my employer offers both a PPO and HMO insurance, only one of those companies will cover PKU, so I don’t really get a choice in what insurance I opt for even though my co-workers do. Currently, I have to get the HMO which covers food and formula completely. I’ve had to pay nothing.