Six years ago my son, Jacob, was born with a rare metabolic condition that requires detailed, daily medical care, including the use of nutritional supplements. These nutritional supplements are highly specific to his condition and are essential to his thriving. Without them he would run the risk of brain damage, coma, and death.
Luckily, thanks in large part to these supplements and the excellent care that he receives from his medical team, Jacob is thriving. But these supplements are incredibly expensive and are not accessible to everybody with a condition like Jacob’s. These children are amazing and can be incredible members of society but they need our support and they need access to essential care, like affordable nutritional supplements. I ask you to please support this bill.