Sienna, Age 22

When my daughter Sienna was 3 months old she was diagnosed with a rare metabolic disease called mma-cblc. This disease prevents her from processing b-12 correctly or breaking down protein correctly. She was in the NICU & very critical before

Read more

Louie, Age 3

Louie was diagnosed when he was one week old. We were told to expect motor delays, intellectual disability, and vision loss, assuming his health was well-controlled. We were using the standard recommended dose for his injection of compounded b12 until

Read more

Keira and Victoria, Ages 5 and 7

This bill would allow my girls to never have to worry about their formula. Our insurance says it’s covered but we need to meet our deductible. By the time we pay for it the year restarts.

Read more
The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.