For now while she is a baby our insurance covers some of her formula, but none of her medically necessary supplements and none of the formula or low protein food when she is older. She will never have chic-fil-a with my son, order pizza with friends, or share food on a date. Toddlers are known for their love of salad…right?? When she can’t have bread, pasta, milk, cheese, meat, beans, tofu…what can you even feed a small child that they want? It’s a hard life and having no coverage on the low protein foods that kids love or that adults can eat and meet their minimum calorie goals mean that we still struggle even after hitting our max out of pocket on insurance every year. It’s a huge financial burden and one that would be easily solved without government assistance for us if only there were legislation to ensure that insurance would be required to cover the medical food that Zoey needs.
- Evan, Age 13