Hailey, Age 17
My insurance pays for amino acid modified formula but will not provide any coverage for low protein foods. Low protein food is very expensive. Sometimes my daughter has to go without foods she needs because we simply can’t afford it. Small quantities of food come at a very high price tag. We aren’t able to purchase all that she needs because of the financial burden is creates for the family. The expense of low protein foods limits other life experiences that I could provide for my child because most of our “extra funds” go to buying the food that she needs in order to survive. Her diet requires low protein food options. It’s unfortunate that we have no coverage to assist our family with such a great medical expense.