While we are very fortunate to have insurance that can help us with the costs, there is still a great financial strain associated with the cost of providing nutrition for our son. Additionally, the stress and anxiety over his future and whether he will be able to maintain his diet as an adult because of the financial strain. Having insurance providers required to help with coverage would help ensure that we can provide our family with the other necessities of life and would limit the strain and stress of this financial aspect of this disorder.
- Deckard, Age 1
- Johnny, Age 4