I’m Elizabeth and I have Classic PKU. When I was five my drs and parents a took me off the diet and formula. I was fine till age 30. That’s when i started suffering from pku side effects and severe health issues. At age 42 started the formula again. But still no food coverage by insurance. This would help immensely, financially, as I’m now disabled and live on a low fixed income. Medically it would be a god send. #MiraclesOfMiracles. My insurance covers my formula but no medically necessary food. I have to FIND and Buy my own low protein food and there’s not a lot out there.