Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance alone. One will be coming off of our insurance in two years and she is already worried about what she will do. That is also the time when her and her husband have planned to start a family. Strict adherence to diet is crucial at that time and she will have to worry about having coverage for PKU. It is hard enough to try and conceive and carry out a healthy pregnancy with PKU without adding the stress of not having coverage. Insurance covers most and we just pay a copay. At times, we have had to pay the full cost of medical foods (over $1000 per month for each child).
- Callaway, Age 1
- Jacob, Age 6