I was born in 1990 with PKU. My parents were told to expect severe disabilities. We need these medical foods for our everyday lives. The prices of these foods are outrageous $11.49 for ONE box of medical pasta. These medical foods and medical formulas protects us. It is bad enough that PKU is NOT seen as a disability for SSI let alone not even being able to afford our medical foods. It is very important that we try to get coverage for medical foods because when 1/4 cup of rice is all you can eat it is hard to become full and not hungry. With the medical pasta we can have more than 1/4 cup. PKU people are hungry all the time because we cant eat like normal people. I would love to see people live off of 10 grams protein a day sometimes they even drop it to 5 grams of protein a day. It is just not possible that is why it is so important to get these medical foods covered for all PKU patients. My insurance covers medical formula but not medical food.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.