When Emalynn was born and diagnosed with PKU, we had no idea what to expect or think. Luckily we were blessed with a bright happy 3 year old who does her best to understand this disorder, but her diagnosis has had its challenges. One of the biggest challenges for us has been the trying to get the medical foods, formulas and medicines that she needs while fighting with the insurance to see what they will cover, partially cover or completely deny. Having coverage for medical nutrition would mean being able to get the foods Emalynn will need as she grows bigger. It would mean not having to constantly fight with the insurance company about whether or not they should cover her formula which she needs to continue healthy development. It would mean not having to worry about approval each time an order goes in. It would help us be able to just focus on Emalynn and our family.
- Terry, 4
- Stephanie, 12