Having medical nutrition covered by the government would make life a lot more simple. I would have less stress and more peace of mind knowing that I don’t owe a doctor or insurance company or food company an astronomical amount of money in which I may need to take out a loan. Having medical foods covered is a necessity in order to maintain a healthy PKU low-protein diet. Following a strict PKU diet, much of my daily intake consists of low protein breads and pastas. My pasta costs almost 10 times more than pasta bought at a local grocery store. My medical food should be looked at as medicine, not food. It is a requirement, not a choice. Having medicine covered like my Kuvan would be a huge relief as well. If the technology and medicine is there to help someone live a meaningful and somewhat normal life, every effort should be made to do that. Due to its high costs, most people will never get to experience that.
- Zoey, 15 months
- Jordy, Age 1