I had never heard of PKU until my two-year-old granddaughter was diagnosed. Fortunately, the state of Michigan pays for her medical formula, but nothing towards all the low protein foods that are required. Medical formula is covered by state of Michigan, any other low protein foods are not. I am retired but work part time, and I put some money back each paycheck to help my granddaughter’s family afford good food. Low protein food is extremely expensive. Without the low protein food, Piper would not be able to function how she does now.
- Cooper, 10 months