We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
My son, Max was diagnosed with FPIES after I stopped breastfeeding and he started on milk-based formula and we started introducing ...
The formula is very expensive!...My Grand-daughter and her husband both work and with all the bills cannot afford the formula (which is relevant in this disease)
The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula ...
Earlier this year we took custody of our grandson Anthony. He was diagnosed after birth with PKU. He has lived with us since birth, ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
When I was eligible for the Affordable Care Act, I “made too much money” since child support is added in for income for DE ...
My name is Sarah. Im 24 and I have classical PKU which means my enzyme in my liver has a hard time fuctioning breaking down ...
I was able to carry two successful pregnancies to term and have to very healthy children as a result of having coverage of medical food coverage. Without medical food coverage, my life would not have been the same.
I am very fortunate to have great coverage for medical food and formula. This has not always been the case. When I was out of school ...
Isabelle has Classic PKU. She is 2.5 years old and can have 3 grams of natural protein per day. For context, one 8 oz glass of milk ...
Turning 26 and navigating through my own insurance was a nightmare.
Turning 26 and navigating through my own insurance was a nightmare. NYS Medicaid is a blessing but not sure how long I can stay on ...
My son has classic PKU and his food options are very limited. We rely heavily on medical foods to fulfill his dietary needs. It is a ...
Food is the most important thing to any mother who has an infant. While most mothers who have a two week old are just making sure they ...
Insurance covers my daughters medical formula but doesn’t cover her medical foods. If my daughters medical foods were covered it ...
My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets ...
I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...
I have to be on Medicaid because I can not afford to get insurance on my own or thru my employer and it is very difficult to make ends ...
My husband and I opted to pay more out of pocket each month, for our portion of the monthly insurance premium to assure that Addison ...
My name is Christy and I am a mother to 2 beautiful kids, both with PKU. My daughter, Rebecca, is 21 on Sunday and my son, Stephen, is ...
We have 2 kids with PKU, so having coverage for medical nutrition would mean the world to us. My husband switched jobs for better ...
Our daughter is on my husband’s insurance which we consider to be good medical insurance through UHC. We however did try to contact ...
I had never heard of PKU until my two-year-old granddaughter was diagnosed. Fortunately, the state of Michigan pays for her medical ...
It scares me to think about our daughter not having access to her medical formula. This isn’t an option for her, her life depends ...
Our daughter has even told her dad and I that she thinks at this point, she will choose not to have children due to the cost of her medical foods!
Our 25 year old daughter has always done really well with her PKU diet, especially throughout her schooling! We were able to receive ...
When patients' mental health deteriorates because they cannot follow their diet, they often lose their job and get incredibly frustrated with the system.
There are so many patients (especially PKU patients) who would like to improve their health status, including mental health, but ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...