Scarlett, Age 2

Phenylketonuria (PKU) · Utah
Annual cost: $4800

Having coverage would make sure that my baby will always have the food and formula she needs throughout her life to have a healthy ...

Leah, Age 12

Alabama · Homocystinuria
Annual cost: $3600

We have an excellent private BCBS insurance policy, that we pay monthly for. As great as it is, it will not cover our daughters ...

Emeline

Maryland · Phenylketonuria (PKU)
Annual cost: $5400

Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for ...

Joseph

Homocystinuria · Illinois
Annual cost: $4800

Better coverage for my son would alleviate the concerns about not being able to afford the medicine he needs . Insurance info: Our ...

Joseph

New York · Phenylketonuria (PKU)
Annual cost: $4200

I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...

Hannah, age 18

Phenylketonuria (PKU) · Utah
Annual cost: $6000

I actually have two daughters with PKU. My grocery and monthly expenses is double what the average family pays. Medical bills have ...


Juliana

New York · Phenylketonuria (PKU)
Annual cost: $2400

It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food. My insurer will ...

Danae

Homocystinuria · Illinois
Annual cost: $18000

Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the ...


Mark, Age 61

Pennsylvania
Annual cost: $7500

So far Mark’s medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never ...

Floyd, Age 2

CROHN'S · Georgia
Annual cost: $6000

I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...

Nolan

FPIES · Massachusetts
Annual cost: $7200

Our Family Story: During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical ...

Liza

Oregon · Phenylketonuria (PKU)
Annual cost: $8400

Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...

Riley

Illinois · Phenylketonuria (PKU)
Annual cost: $9600

My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more food instead of being ...