A young couple with a child with PKU in my care made the difficult decision to move to another state and region where they would be able to depend on full medical food and formula coverage and to afford the cost of just one child with PKU.
Staff time alone is the most major barrier. We are fortunate to have a Metabolic Clinic Manager to keep on top of all the insurance ...
Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the ...
I began experiencing unusual gastrointestinal symptoms around 1990 which included severe stomach aches, bouts of diarrhea and frequent ...
Having coverage for medical nutrition would mean everything to our daughters. They have had to take jobs because of the insurance ...
My name is Kelly and I was born on October of 1989. I appeared to be a perfectly healthy baby, the youngest of three, to loving ...
Turning 26 and navigating through my own insurance was a nightmare.
Turning 26 and navigating through my own insurance was a nightmare. NYS Medicaid is a blessing but not sure how long I can stay on ...
Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...
Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since ...
Stepping out of the Blue – (Bear with me for a moment, this will all make sense in the end)
Where it all began: I located a new ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
Having coverage for the food and formula would be absolutely amazing for our family. I would be able to make a career move making more ...
Landyn has been blessed to have Medicaid as his medical costs over they years would have been impossible for our family to pay. When ...
My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up.
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up. While we ...
I have three children, my six-year-old twin daughters Lucy and Lily and my three-year-old son Lucas. Lucy and Lucas were diagnosed at ...
Six years ago my son, Jacob, was born with a rare metabolic condition that requires detailed, daily medical care, including the use of ...
Coverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
The average child eats what everyone else eats and thrives based upon a combination of nutrition, exercise and genetics. While we can ...
Emmalyn graced us with her presence 10 and 1/2 years ago at 35 weeks gestation weighing in at 5 lbs, 7 ozs. and 18 inches long. Our ...
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
My husband and I had to declare bankruptcy this past year because the medical bills and formula were so costly. Our former HMO did not ...
Medical coverage for our family will mean less time fighting the insurance for coverage. They decide when and how they are going to ...
Nora was born tox positive to several drugs and social services moved her to my home to be with her bio sibling for adoption. She ...