Asher is my happy, smart, funny, rambunctious four year old. He loves to play with tractors, his sister, swim, and eat! He loves ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...
My name is Renee. I am recently married in August 2017. I am currently on pre-con trying for our first child. My levels have been ...
Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the ...
Medical Nutrition coverage will ensure my son gets the formula he needs to grow and develop normally. I have been fighting for ...
My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more food instead of being ...
A young couple with a child with PKU in my care made the difficult decision to move to another state and region where they would be able to depend on full medical food and formula coverage and to afford the cost of just one child with PKU.
Staff time alone is the most major barrier. We are fortunate to have a Metabolic Clinic Manager to keep on top of all the insurance ...
I have two daughters. Only the younger one has PKU. We struggle to find foods that Isabel can eat. Medical foods are incredibly ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
My insurance company recently denied coverage for my daughter’s formula to treat her PKU. They said she can only have formula ...
Hi, I’m Pat and this is my son, Isaac, and husband/caregiver, David. Isaac is high functioning Autistic. I’m Type 2 ...
Having medical food coverage would mean that I would not have to worry about double insurance for our daughter, and fighting insurance ...
Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since ...
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food. My insurer will ...
It’s very important having coverage for medical nutrition. We could not afford to pay out of pocket and have no private insurance. ...
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Because of the cost of desperately required essential nutrition (allergen free toddler formula) I have chosen to continue ...
As all parents who experience it, we were overwhelmed once we got the call, at 5 days of age, that our daughter Maeve had been ...
What would having coverage for medical nutrition mean to me, to my family? Everything!! The options of being nutritionally satisfied ...
I am a city worker. The free insurance didn’t cover feeding tube supplies or formula. So I had to switch to an insurance I had to ...
I have three children, my six-year-old twin daughters Lucy and Lily and my three-year-old son Lucas. Lucy and Lucas were diagnosed at ...
Sarah's family's inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...
My daughter Breeze, was born with a metabolic disease, called PKU. PKU is a rare genetic disease. She is 1 of 15,000 PKUers living ...
Ally was diagnosed at ten days with brain growth affecting diet based treatment PKU. She has been a resident of SC since she was six ...