I am a subscribed member to the largest employer sponsored health insurance program in the country, the Federal Employee Health ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets ...
We have three beautiful children, two of which have PKU. We spend over $120 a month on medical formula, foods, and medication for PKU. ...
I have a medical condition called Phenylketonuria (PKU). PKU is an inherited metabolic disorder where my body cannot break down ...
We are lucky that my husband works for Google and has some of best health Insurance you can get but most are not so lucky. We had to ...
It would relieve a lot of stress and tension in our household. Having to pay out of pocket for my son’s formula has brought me to ...
I am a new mom and PKU adult, I rely on my medical food to provide myself and my son the necessary nutrition for everyday life. All ...
My son began drinking Neocate junior at 12 months. It was not covered by our insurance. All formula is excluded from out plan because ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
Medical nutrition coverage has significantly reduced the cost and strain on our family’s income for our daughter’s food. ...
Landyn has been blessed to have Medicaid as his medical costs over they years would have been impossible for our family to pay. When ...
Josiah is an adorable baby boy who lives with his parents and older sister Middletown, New York.
His story starts like that of most ...
Xander was diagnosed with MSUD at 4 days of life. We were in a hospital that did not know how to treat, was not prepared to treat, and ...
Our PKU story is just getting started. We are older parents now. At ages 45 and 37, we decided to have a baby. We had just gotten ...
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food. My insurer will ...
I have two daughters, three years and almost one month. We didn’t have a diagnosis for my oldest for 15 months. Her leg broke ...
My kids have been on their diet their entire lives (we have three kids with PKU) and now at a crucial time (maternal age), she can not ...
Food is the most important thing to any mother who has an infant. While most mothers who have a two week old are just making sure they ...
I have two boys with Phenylketonuria, ages 5 and 3. We moved recently from California to Washington state. In California we had state ...
Having medical food coverage would mean that I would not have to worry about double insurance for our daughter, and fighting insurance ...
Hello, I am the mother of a ten-month-old phenylketonuria patient. Having more help to get instant needs would be amazing. With having ...
Looking at this brother and sister pair, you don’t see anything besides two happy kids. Thankfully, Zay and Ellie are happy and ...
I am aware that we are some of the lucky ones in that we have great medical coverage via TRICARE. Others should be afforded the same opportunity for coverage
Evan was born with MSUD and we were lucky that TRICARE covered his formula and supplements until his transplant. At the time, they did ...
Meet Adler! He is an amazing little boy that lives in rural Missouri with his Mom and Dad. Adler was diagnosed with PKU shortly after ...