It’s very important having coverage for medical nutrition. We could not afford to pay out of pocket and have no private insurance. ...
My insurance as a NYC public school teacher covers Emily’s medical formula only. But it is never easy. Every year there is a ...
Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for ...
Insurance covers formula (so many cans a month) and also covers up to $5000 of food during the fiscal year July-April. If during the ...
Ethan has tyrosinemia and cannot eat a regular diet. He is restricted on the amount of protein he is able to consume on a daily basis, ...
The biggest frustration as a provider is knowing that many patients are not receiving the care they need to manage their conditions. The second biggest frustration is that even when an insurance “covers” medical foods, it may still not be obtainable since many ‘in-network’ distributors will not supply the needed products.
Coverage of medical foods is a large part of my practice in both my time-effort and my care recommendations for patients. For every ...
We have many bills due to traveling out of state to help our 5 year see doctors that specifically help his condition. By not paying ...
My daughter, Lyndsee, was diagnosed in January 2016 with a rare disease, eosinophilic esophagitis. Therefore, she has to live on a ...
Being able to access medical formula is absolutely necessary for my family. My 10 year old son gets 1/3 of his nutrition from Neocate ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
Our beautiful baby boy Aidan was born last July and shortly thereafter diagnosed with PKU. Once we learned he could grow and develop ...
Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the ...
Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...
I am a new mom and PKU adult, I rely on my medical food to provide myself and my son the necessary nutrition for everyday life. All ...
There are a lot of difficulties that come with having a metabolic disorder. Our society revolves around food, and daily ...
Our Emily was diagnosed at 9 days old with Phenylketonuria (PKU). During the last seven years of her life we have had insurance ...
I was diagnosed with PKU late, at thirty days. I have some issues, mainly short term memory, due to my late diagnosis. I graduated ...
My daughter has a milder form of PKU and therefore does not need as much formula to live a healthy life. However, as she gets older ...
At 1.5 years old she weighed 14 pounds and had g-tube surgery. She's 3 now and has never eaten food.
Our beautiful happy and energetic three year old daughter Danielle was born at 35 weeks New Year’s Day 2016. She was diagnosed at ...
When I was eligible for the Affordable Care Act, I “made too much money” since child support is added in for income for DE ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
Complete cost coverage would be wonderful, but more importantly for us, awareness of the medical need for this coverage and how it ...
Our family is currently affected by having to pay out-of-pocket for medically necessary formula (Elecare, Jr) for our now 7-year-old ...
Sarah's family's inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...
As a nutrition expert, it should be up to me, the family and the healthcare team to decide on how best to treat these children and if nutrition is the ideal treatment, then it should be included as part of the child's covered treatments. It is frustrating to have to delay or change care if nutrition therapy is not covered. This can worsen illness and also cause undue stress and harm to the child and their family.
As a Registered Dietitian who works in a pediatric outpatient gastroenterology and nutrition office, I routinely work with children ...