For our family, the most meaningful part of medical nutrition coverage would be hope and confidence for the future. We have coverage ...
Having coverage for medical nutrition would mean the world to our family. Instead of feeling like I have to creatively figure out how ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
My daughter, Brittany, was born with PKU and we were able to provide her with the nutritional products that she needed to avoid significant brain development problems. Unfortunately, that is not the case for all children and adults in the US.
The Medical Nutrition Equity Act (MNEA) has been re-introduced in Congress. We really need to push hard to get this passed, so I am ...
When I think of our little guy and how important it is for him to follow a structured diet, I don’t want financial limitations to be the reason of failure.
Finding out your little one has a life changing condition at birth can be a whirlwind. Self Discipline is something that is mandatory ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
Our beautiful baby boy Aidan was born last July and shortly thereafter diagnosed with PKU. Once we learned he could grow and develop ...
Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Insurance covers formula (so many cans a month) and also covers up to $5000 of food during the fiscal year July-April. If during the ...
Tyler began getting sick at age 4 eating normal food. We went through three large healthcare institutions in NC where we live for ...
Medical coverage for our family will mean less time fighting the insurance for coverage. They decide when and how they are going to ...
So far Mark's medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never know year after year if it will be or not and January is always stressful not knowing if will be or not.
So far Mark’s medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never ...
It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which was discovered very ...
I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...
I actually have two daughters with PKU. My grocery and monthly expenses is double what the average family pays. Medical bills have ...
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up.
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up. While we ...
Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...
The metabolic disorder itself is such a challenge in learning and dealing with and then to have to worry about the funds to get the food, formula and medical care she needs is another level of added stress.
My daughter was diagnosed with PKU at one week old. The moment that doctor called us it changed our lives forever. The metabolic ...
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
My son is currently ten years old. When he was first born, his father’s health insurance through work wouldn’t cover this ...
I began experiencing unusual gastrointestinal symptoms around 1990 which included severe stomach aches, bouts of diarrhea and frequent ...
Ally was diagnosed at ten days with brain growth affecting diet based treatment PKU. She has been a resident of SC since she was six ...
Our family is unique, in that I have PKU as well as our four adopted sons. With no guarantee of insurance coverage, I fear that my ...
Our PKU story is just getting started. We are older parents now. At ages 45 and 37, we decided to have a baby. We had just gotten ...
Having full and mandatory coverage would release a lot of strain on our annual budget and give us peace of mind. Trying to get ...