Landyn has been blessed to have Medicaid as his medical costs over they years would have been impossible for our family to pay. When ...
Having coverage for the food and formula would be absolutely amazing for our family. I would be able to make a career move making more ...
When my son, Draegen, was younger, he was on Medicaid. It covered his formula, but only a very specific kind. He ended up burnt out on ...
We are self-insured. We have had to change health insurances every year for the past several years because the insurance company went ...
Hi, I’m Pat and this is my son, Isaac, and husband/caregiver, David. Isaac is high functioning Autistic. I’m Type 2 ...
My state gives us formula covered which is the biggest blessing but my daughter is just now getting ready to start foods. I am a ...
Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires ...
My insurance provides coverage of Ashlynn’s PKU metabolic formula, ONLY after we have met her deductible. They cover NO medical ...
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
I actually have two daughters with PKU. My grocery and monthly expenses is double what the average family pays. Medical bills have ...
Our state has a state funded program for the formula. The Kuvan my daughter takes we are getting assistance through NORD (charity ...
Our 8 yr old has been on EleCare/hypoallergenic formula since he was 9 months old. His first 3 years of life, he went from no safe ...
Coverage for medical nutrition would be a huge blessing to me and my family, and also many other individuals with PKU especially ...
Louie was diagnosed when he was one week old. We were told to expect motor delays, intellectual disability, and vision loss, assuming ...
Having full and mandatory coverage would release a lot of strain on our annual budget and give us peace of mind. Trying to get ...
Our Family Story:
During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical ...
Mayes was diagnosed with EoE and EC at the age of 15 months old, after a long and painful process of seeking a diagnosis. He was ...
Jane’s formula cost out of pocket for EEN was approximately $300 per month. Her team of health care providers attempted to obtain insurance coverage but was denied even after appeals were attempted.
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...
I have two sons and only Leo has PKU. We maintain a low protein diet for Leo, but due to the high cost of low protein medical foods, ...
We have 2 kids with PKU, so having coverage for medical nutrition would mean the world to us. My husband switched jobs for better ...
We have spend hundreds of hours on the phone, writing letters and working with her doctors for our insurance to provide the medical nutrition needed for Ellis to stay at her healthiest.
We have been fighting insurance and coverage since Ellis was diagnosed. It is very time consummating and difficult to work with ...
Elliot was diagnosed with PKU at 6 days old. He is a happy, energetic and loving 2 year old. We are fortunate enough to have formula ...
The formula is very expensive!...My Grand-daughter and her husband both work and with all the bills cannot afford the formula (which is relevant in this disease)
The formula is very expensive!…My Grand-daughter and her husband both work and with all the bills cannot afford the formula ...
When Garrett was born at 9 lbs 4 oz, we could not have been more thrilled to have a such a fat, happy baby! When we received the call ...
Briana was born in 1989 and there were not many supports for her then, both in medical assistance or low protein supplement and food ...