My insurance pays for amino acid modified formula but will not provide any coverage for low protein foods. Low protein food is very ...
Having coverage would make sure that my baby will always have the food and formula she needs throughout her life to have a healthy ...
When Emma was first born my husband worked at Avaya and we had Aetna. They refused to cover her medical formula despite appeals with ...
Thirteen years ago our Daughter was born with Phenylketonuria (PKU). Since then for our family of seven we have begun the upward ...
We have an excellent private BCBS insurance policy, that we pay monthly for. As great as it is, it will not cover our daughters ...
My son was a week old when we got the news that he has PKU. I had no clue what this was and didn’t realize just how serious it ...
My son is currently ten years old. When he was first born, his father’s health insurance through work wouldn’t cover this ...
Having coverage for medical nutrition would mean so much to me and my family. As of now, my family pays about $450 out-of-pocket for ...
I am disabled so we are a one-income family (I am unable to work outside the home). I have several diseases and syndromes that cause ...
Better coverage for my son would alleviate the concerns about not being able to afford the medicine he needs .
Insurance info: Our ...
Josiah is an adorable baby boy who lives with his parents and older sister Middletown, New York.
His story starts like that of most ...
My story is a sad one. I am a parent of a PKU individual. My son was born June 17, 1985, diagnosed with PKU at 3 weeks of age. He was ...
I am a voting 46 year old PKU adult male who is self reliant and is a major source of income in my house hold. I have a career, build/ ...
I actually have two daughters with PKU. My grocery and monthly expenses is double what the average family pays. Medical bills have ...
Our journey begin in January 2018. Owen was 11 months old and went into anaphylactic shock due to peanut butter. This was just the tip ...
Having medical nutrition coverage would mean that I get to live my life without worrying. I’ve had to move to different states ...
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food.
It would be such a relief for me to know that my daughter would always be able to afford her formula and medical food. My insurer will ...
Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the ...
Canaan is a thriving, active 2-year-old boy with a rare metabolic condition called VLCAD. He lives with his parents in Georgia. He was ...
When Garrett was born at 9 lbs 4 oz, we could not have been more thrilled to have a such a fat, happy baby! When we received the call ...
So far Mark's medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never know year after year if it will be or not and January is always stressful not knowing if will be or not.
So far Mark’s medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never ...
I never thought that food allergies were “that serious” until all 3 of my children were diagnosed with IGe mediated allergies, ...
Our Family Story:
During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more food instead of being ...