Turning 26 and navigating through my own insurance was a nightmare.
Turning 26 and navigating through my own insurance was a nightmare. NYS Medicaid is a blessing but not sure how long I can stay on ...
It would mean so much to have the medical nutrition equity act passed. I have a diagnosis of homocystinuria which was discovered very ...
My insurance company recently denied coverage for my daughter’s formula to treat her PKU. They said she can only have formula ...
I recently became ineligible for the Medicaid insurance I was on, I make just a little over the cap for income to be eligible. While I ...
My kids have been on their diet their entire lives (we have three kids with PKU) and now at a crucial time (maternal age), she can not ...
Remington was diagnosed with eosinophilic esophagitis as a toddler. By the time he was 3 years of age, it became clear that food was ...
A young couple with a child with PKU in my care made the difficult decision to move to another state and region where they would be able to depend on full medical food and formula coverage and to afford the cost of just one child with PKU.
Staff time alone is the most major barrier. We are fortunate to have a Metabolic Clinic Manager to keep on top of all the insurance ...
My name is Sarah. Im 24 and I have classical PKU which means my enzyme in my liver has a hard time fuctioning breaking down ...
My daughter has a milder form of PKU and therefore does not need as much formula to live a healthy life. However, as she gets older ...
Our Emily was diagnosed at 9 days old with Phenylketonuria (PKU). During the last seven years of her life we have had insurance ...
My son just turned one. Just over a year ago, our lives drastically changed when we found out our little guy has PKU. Since he’s ...
Our insurance covered the medical beverage for one year and then stopped. This was so terrible because we had no notice and the ...
Having a child with PKU is extremely time consuming! I am always preparing special food for him and making sure he has what he needs ...
It would relieve a lot of stress and tension in our household. Having to pay out of pocket for my son’s formula has brought me to ...
It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will ...
I want to introduce you to my eight-year-old daughter, Claire. At first glance Claire appears to be a normal 2nd grader. She loves ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
I am currently a foster mom to a 2 year old with PKU. We live in the state of NC where medical food is not covered. His food is very expensive & without coverage, it is nearly impossible to buy.
I am currently a foster mom to a 2 year old with PKU. We live in the state of NC where medical food is not covered. His food is very ...
Better coverage for my son would alleviate the concerns about not being able to afford the medicine he needs .
Insurance info: Our ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
We are lucky that my husband works for Google and has some of best health Insurance you can get but most are not so lucky. We had to ...
It’s very important having coverage for medical nutrition. We could not afford to pay out of pocket and have no private insurance. ...
Though I’m on an employer plan, we contribute another $9000 a year to cover premiums for our 5 member family. That plan has a $6000 ...
This is Lillian. She is almost 3 and still drinks formula because she has an eosinophilic disorder. Lillian has Eosinophilic ...
My daughter is a vibrant 1.5 year old. She currently requires about 9 cans of formula a month, which will only increase as she gets ...