Krew, Age 3

When Krew turns 6 and is no longer covered by the state metabolic program, we will have to seriously consider moving to a state with better coverage. It would break our hearts to take him and our other children away from home. Away from family and close friends. But unfortunately, even with a great paying job, we will not be able to afford all things necessary for living with PKU.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.