T, Age 5
EOSINOPHILIC DISORDERS · FPIES · TexasAnnual cost: $8400
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
FPIES is a type of food allergy that affects the gastrointestinal tract. Classic FPIES reactions typically occur two or more hours after ingesting the “trigger” food and typically involve profuse vomiting, diarrhea, and can progress to shock. Reactions can be severe and require immediate medical attention. Chronic FPIES reactions are typically characterized by increasingly severe/intermittent vomiting, chronic diarrhea and possibly progressing to an illness mimicking a severe total-body infection in addition to potentially difficulty gaining or maintaining weight. There are no simple tests to diagnosis FPIES. Additionally, there are no FDA approved therapies for the treatment of FPIES. The main treatments are avoidance of trigger foods with a personalized dietary plan that ensures proper nutrition.
By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...
My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure ...
Over the course of five years, our out-of-pocket expenses for medical nutrition for two children was approximately $85,000. Add to it ...
Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. ...
While we are fortunate that wic and insurance cover Lucas’s formula because of his medical necessity as well as my persistence ...
My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...
Nora was born tox positive to several drugs and social services moved her to my home to be with her bio sibling for adoption. She ...
My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his ...
Our Family Story:
During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical ...
Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...
Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergic to upwards of 40 foods. Even at the current ...
Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
My son, Max was diagnosed with FPIES after I stopped breastfeeding and he started on milk-based formula and we started introducing ...
Sarah's family's inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...