By the time my son was properly diagnosed, he was extremely sick and we were relieved to find an elemental formula that could provide calories and nutrition he so desperately needed. However, we were stunned by the cost on top of already steep medical bills. The stress of feeding him was enormous.
T, Age 5
EOSINOPHILIC DISORDERS · FPIES · Texas
Annual cost: $8400
My son was diagnosed with Food Protein Induced Enterocolitis Syndrome when he was 11 months old. Following scopes, he was later ...
Gianna
FPIES · Michigan
Annual cost: $115212
Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...
Brooks, Age 9 monhts
FPIES · Illinois
Annual cost: $600
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...
Ronan, Age 2
FPIES · Ohio
Annual cost: $9600
My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure ...
Isaac (13) and Caleb (11)
FPIES · New Hampshire
Annual cost: $18000
Over the course of five years, our out-of-pocket expenses for medical nutrition for two children was approximately $85,000. Add to it ...
Katherine, Age 8
FPIES · Louisiana
Annual cost: $8400
Katherine was only 2 months old when we knew something wasn’t right. It took us 8 more months to figure out what was going on. ...
Lucas, age 18 months
FPIES · New Jersey
While we are fortunate that wic and insurance cover Lucas’s formula because of his medical necessity as well as my persistence ...
Sutton, Age 4
FPIES · Texas
Annual cost: $10200
My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...
Eleanor, Age 7
California · FPIES
Nora was born tox positive to several drugs and social services moved her to my home to be with her bio sibling for adoption. She ...
Reynaldo
Florida · FPIES
Annual cost: $3864
My son’s food allergies were so severe, he was reacting to the food I was eating through breastfeeding. He had blood in his ...
Nolan
FPIES · Massachusetts
Annual cost: $7200
Our Family Story:
During the spring and summer 2019, we struggled to understand what our 10-month-old son’s, Nolan, medical ...
Caroline, age 18 months
FPIES · Maryland
Annual cost: $9600
Caroline was born 7 weeks premature. She stopped breathing several times almost dying. Neocate Jr is the only think she eats to ...
Elsie, Nearly 2
FPIES · Pennsylvania
Prior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Avery, Age 3
EOSINOPHILIC DISORDERS · FPIES · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New York
Annual cost: $2700
Coverage would ease a huge financial burden for our family. Not only is the formula expensive, but so is the specialized diet Avery ...
Seton, Age 3
FPIES · Wisconsin
Annual cost: $3600
Our son was diagnosed with FPIES at around 7 months of age. He is intolerant or allergic to upwards of 40 foods. Even at the current ...
Lincoln, Age 2
California · FPIES
Annual cost: $3600
Lincoln was diagnosed with a severe milk protein allergy at 2 weeks of age after blood was visibly seen in his stool. His pediatrician ...
Jamus, Age 9
FPIES · Nebraska
Annual cost: $1200
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Max, Age 17 months
Colorado · FPIES
Annual cost: $3240
My son, Max was diagnosed with FPIES after I stopped breastfeeding and he started on milk-based formula and we started introducing ...
Sarah's family's inability to pay for medical nutrition is causing deficits which may impair her growth and cognitive development.
Sarah
FPIES · Georgia
Sarah, who lives near Atlanta, GA, was a healthy baby, born full term to a mom who had a normal and healthy pregnancy. She was ...
