I have two boys with Phenylketonuria, ages 5 and 3. We moved recently from California to Washington state. In California we had state insurance coverage and it covered foods like pasta, bread mix, cake mix, tortillas. In Washington insurance companies are not required to cover any of this so approximately $1,000-2,500 worth of food per year is not covered. Our insurance covers pku formula but no medical foods. These foods are essential in our kids’ diet so that they receive the proper nutrition and calorie count that their bodies need let along just being able to eat everyday foods at are safe and made specifically for PKU.
- Carter, Age 5