Maximus, 9

Earlier this year we experienced what not being able to afford formula & medications or have no insurance coverage is like for so many. Our son Maximus 9 y/o noticed a taste difference in his formula & refused to drink it. He was off formula & his Kuvan medication (we crush his kuvan tabs into his formula). Not drinking formula meant no Kuvan either.

He was off his formula & Kuvan for only 5 days. His blood PHE level skyrocketed and he was displaying many behavioural problems. He was moody, erratic, emotional, crying, frustrated & bouncing off the walls.

Once we go him back on his formula & medication it took a further month to get his PHE level back into range & his symptoms to fully reverse.

I can not imagine having to see my son in this much distress & pain struggling for mental clarity due to no medical coverage.

Other Missouri residents who rely on medical foods

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.