I am very fortunate to have great coverage for medical food and formula. This has not always been the case. When I was out of school but doing my internship I had to rely on samples of formula to get me through. I was no longer eligible to be on my mother’s insurance. It was a struggle both financially and physically. At another point in my career, I found myself working as a metabolic dietitian in a metabolic clinic which treated PKU and the insurance I had through this hospital refused coverage of my medical food and formula. I was fortunate to work with an amazing doctor who met with the hospital administration and was able to reverse this and I and others working in the hospital were able to gain coverage for our medical foods and formula.

I am currently am insured under my husband’s company. Living in the state of Washington, I am grateful for his employer provided insurance and their coverage. The state of Washington will only cover one formula for PKU management. This particular formula is one that I do not tolerate and it would compromise my health if it was my only option. I was able to carry two successful pregnancies to term and have to very healthy children as a result of having coverage of medical food coverage. Without medical food coverage, my life would not have been the same.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.