My mother has worked as many as 5 jobs concurrently to maintain employer-provided insurance and has CONSTANTLY fought to keep me on a Medicaid waiver program, as they try to kick me off the program frequently. All of this and in Texas, I am still unable to have ANY coverage for medical nutrition, which is costly just as the medication needed to treat my metabolic disease. I turn 18 this week, which should be an exciting birthday. Instead, I have to worry about how I am going to be able to afford paying for medical nutrition with a minimum wage job. Knowing the costs of medical food for my disease, it would be more than my monthly income as a courtesy clerk. I also worry about insurance and how I am going to be able to afford medical food when my parents retire. How can you help me? I am just trying to make it through my senior year of high school. How will I attend college and be able to eat medical food? I need your help!
- Tyson, Age 7