Adysen, Age 11

Medical coverage for our family will mean less time fighting the insurance for coverage. They decide when and how they are going to cover it on a month by month basis. She is on one required medical food but uses two other ones to maintain her health for school or sports. We have to pay for these out of pocket because insurance says they aren’t paying for them. Also be nice to know she is covered for when she ages out of her Dad’s insurance policy. There is constant worry about her not being able to get coverage when she is an adult and every January we have to her medical team provide paperwork to the insurance on why she needs coverage. Same diagnosis, Same policy, Same kid. Nothing changes but the year. It’s covered under a prescription policy but $50/ month. Her insurance only covers one formula and it’s the one that is written into the policy.  She likes to switch up but we always can’t because we have to pay for it out of pocket.

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.