Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula needed to maintain a healthy and functional life. Our family is in debt because of the out of pocket expenses…and because of cost I am only taking 2/3 of my recommended dosage. This is affecting my health and therefore my family. I have a wonderfully supportive husband, two children 12 and 7, and am blessed to be a teacher. If it continues down the same road, I am nervous of the continued effects. Our state of Oregon mandates coverage, but we need federal mandates. We have been battling this for years. We have a self-funded insurance option through my husband’s employer. Coverage is refused for even formula. No exceptions will be made for “equality” of employees.

Other Oregon residents who rely on medical foods

The Medical Nutrition Equity Act will provide key support for those Americans who rely on medical foods to survive and thrive.