Phenylketonuria (PKU) is an inherited disorder that increases the levels of a substance called phenylalanine in the blood. Phenylalanine is a building block of proteins (an amino acid) that is obtained through the diet. It is found in all proteins and in some artificial sweeteners. If PKU is not treated, phenylalanine can build up to harmful levels in the body, causing intellectual disability and other serious health problems.
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
Coverage would give our family peace of mind. My youngest daughter, Hailey, has PKU. Everyday, she is required to drink a very ...
If there were no issues with getting medical formulas and medical foods, the stress of worrying would go away. As a child, we had no ...
Thirteen years ago our Daughter was born with Phenylketonuria (PKU). Since then for our family of seven we have begun the upward ...
I was born in 1990 with PKU. My parents were told to expect severe disabilities. We need these medical foods for our everyday lives. ...
I was diagnosed with PKU late, at thirty days. I have some issues, mainly short term memory, due to my late diagnosis. I graduated ...
Ally was diagnosed at ten days with brain growth affecting diet based treatment PKU. She has been a resident of SC since she was six ...
Hi, I am only 5 years old now and my parents struggle to provide the right food for me for my special diet. Coverage would mean now ...
Hello, I am the mother of a ten-month-old phenylketonuria patient. Having more help to get instant needs would be amazing. With having ...
Having medical food coverage would mean that I would not have to worry about double insurance for our daughter, and fighting insurance ...
Our beautiful baby boy Aidan was born last July and shortly thereafter diagnosed with PKU. Once we learned he could grow and develop ...
Having the medical nutrition covered by our insurance would grealty imporve the options and the cost of the food that Clayton would ...
If Brandon was able to get his medical food covered we would take advantage of ordering from Cambrooke foods company more often. His ...
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
We have spend hundreds of hours on the phone, writing letters and working with her doctors for our insurance to provide the medical nutrition needed for Ellis to stay at her healthiest.
We have been fighting insurance and coverage since Ellis was diagnosed. It is very time consummating and difficult to work with ...
My name is Sarah. Im 24 and I have classical PKU which means my enzyme in my liver has a hard time fuctioning breaking down ...
I will begin with saying there are others that are in far greater need of medical nutrition coverage than myself. I have been brought ...
Coverage for medical nutrition for myself would mean freedom from worry and security that I will continue to be my best self. Without ...
Medical Nutrition coverage will ensure my son gets the formula he needs to grow and develop normally. I have been fighting for ...
While we are very fortunate to have insurance that can help us with the costs, there is still a great financial strain associated with ...
My son has classic PKU and his food options are very limited. We rely heavily on medical foods to fulfill his dietary needs. It is a ...
We have three beautiful children, two of which have PKU. We spend over $120 a month on medical formula, foods, and medication for PKU. ...
We adopted our beautiful daughter Zoe three months ago from China. We did extensive research on PKU and prepared ourselves the best we ...
When I moved to the West Coast by myself in 2014, I had to learn everything on my own like finding a clinic and handling coverage. I ...
The amount of medical debt my family has had to trudge through, during my 43 years of living with PKU, has been financially crippling. ...