Leah, Age 12

Alabama · Homocystinuria
Annual cost: $3600

We have an excellent private BCBS insurance policy, that we pay monthly for. As great as it is, it will not cover our daughters ...

James, Age 12

Alabama · EOSINOPHILIC GASTROINTESTINAL DISORDER (EGID)

James DeLano is a 12-year-old boy who has lived his life with rare, chronic disease. As a young child, James was diagnosed with an ...

Millie

Alabama · Phenylketonuria (PKU)
Annual cost: $9600

Because of my early and consistent nutritional treatment, I developed normally and graduated high school and then college. I currently ...