Following a lengthy 30day in the ICU, with a diagnosis of Food Protein Induced Encrolitis, Gianna was prescribed the formlua Elecare. ...
I just want Lily Jo to be able go to school and eat lunch like the rest of the children. I want to know that once again someone ...
We are extremely lucky to have identical twins that can share the trials and tribulations that come along with having PKU, but the ...
My daughter was born with PKU and our world was flipped upside down to say the least. I fought with our insurance company for months, ...
Our employer sponsored healthcare does not cover any of the cost related to my son’s metabolic formula. Because of the cost we ...
My name is Kelly and I was born on October of 1989. I appeared to be a perfectly healthy baby, the youngest of three, to loving ...
Our BCBS does cover the Medical Formula for my daughter and does reimburse for low protein modified foods but this is never without a ...
Having three children with PKU is an unbelievable blessing. We had never heard of PKU before Zach was born and just a few days after ...
I will begin with saying there are others that are in far greater need of medical nutrition coverage than myself. I have been brought ...
Coverage for medical nutrition for myself would mean freedom from worry and security that I will continue to be my best self. Without ...
When patients' mental health deteriorates because they cannot follow their diet, they often lose their job and get incredibly frustrated with the system.
There are so many patients (especially PKU patients) who would like to improve their health status, including mental health, but ...
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up.
Having medical foods coverage would lessen the burden of worrying about the special foods our son will need as he grows up. While we ...
I had never heard of PKU until my two-year-old granddaughter was diagnosed. Fortunately, the state of Michigan pays for her medical ...
To have Elliott's formula and medical nutrition (low protein foods) covered by insurance would be a huge relief. The formula is extremely expensive and we haven't even gotten to the foods yet, but I'm sure those are not cheap either.
Elliott is just over 1 month old and we were unaware that we were carriers for PKU. Living in Michigan, we recently learned that our ...