My husband has been trapped at that job his entire career because of the formula coverage for our son, that we can't afford to walk away from. We have 3.5 years before he ages out of coverage. It is $24,000/yr, for life. The one formula that works for him is not covered by medicaid in our state. We are almost retirement age and plan to work as long as we can to pay for formula.
Justin, Age 22
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · Nebraska
Annual cost: $24000
Our 22 year old son is about to age out of coverage for his formula. He is allergic to everything, except this one formula and ...
Jamus, Age 9
FPIES · Nebraska
Annual cost: $1200
My son, Jamus, has FPIES plus and our medical team thinks he has something that doesn’t even have a name put to it yet. He will turn ...
Brynnslee and Brekelle
Nebraska · Phenylketonuria (PKU)
Annual cost: $4200
This precious picture was taken after the birth of my 2nd who also was diagnosed with PKU right after birth. It symbolizes the bond ...