Tessa
EOSINOPHILIC DISORDERS · UtahWhen I learned that Medicaid might not pay for my formula and supplies, I was fearful. It would be unaffordable to me to live while ...
Lena, Age 2
Phenylketonuria (PKU) · UtahAnnual cost: $1200
We spend every day planning and preparing. Not only what our daughter will eat today and in the week ahead but also for her future. ...
Chelsie
Phenylketonuria (PKU) · UtahAnnual cost: $24000
Coverage for medical nutrition would be a huge blessing to me and my family, and also many other individuals with PKU especially ...
Scarlett, Age 2
Phenylketonuria (PKU) · UtahAnnual cost: $4800
Having coverage would make sure that my baby will always have the food and formula she needs throughout her life to have a healthy ...
Jolynn, 3 months
Phenylketonuria (PKU) · UtahAnnual cost: $120
Our PKU story is just getting started. We are older parents now. At ages 45 and 37, we decided to have a baby. We had just gotten ...
Aly, Sam, and Anna
Phenylketonuria (PKU) · UtahAnnual cost: $6000
What would having coverage for medical nutrition mean to me, to my family? Everything!! The options of being nutritionally satisfied ...
Krew, Age 3
Phenylketonuria (PKU) · UtahWhen Krew turns 6 and is no longer covered by the state metabolic program, we will have to seriously consider moving to a state with ...
Ryan, Age 3
Phenylketonuria (PKU) · UtahAnnual cost: $2400
Having a child with PKU is extremely time consuming! I am always preparing special food for him and making sure he has what he needs ...
Levi, Age 2
Phenylketonuria (PKU) · UtahAnnual cost: $9960
His medical formula/milk costs about $130 a can. He goes through about 5 cans a month. Thankfully that’s currently covered under ...
When I think of our little guy and how important it is for him to follow a structured diet, I don’t want financial limitations to be the reason of failure.
Tyton, 9 months
Phenylketonuria (PKU) · UtahAnnual cost: $2400
Finding out your little one has a life changing condition at birth can be a whirlwind. Self Discipline is something that is mandatory ...
Clark, Age 3
Phenylketonuria (PKU) · UtahAnnual cost: $9000
Clark is 3 years old, and has a twin brother. He is as rambunctious and full of energy as any 3 year old boy could be. He’s the ...
Hannah, age 18
Phenylketonuria (PKU) · UtahAnnual cost: $6000
I actually have two daughters with PKU. My grocery and monthly expenses is double what the average family pays. Medical bills have ...
Jackson, Sawyer, and Holland
Phenylketonuria (PKU) · UtahAnnual cost: $30000
Because of the cost of medical nutrition, we sacrifice many other things. We are blessed to have always been able to afford medical ...
Our clinic's desire to bring the best possible care and outcomes to our patients is directly related to their ability to get necessary medical foods. Many who are not able to get medical foods are not able to follow their restricted diets, leading to poor outcomes and disease associated morbidities.
Ashley, Utah Metabolic Nurse Practitioner
Inborn Errors of Metabolism and Conditions on the RUSP · Provider Stories · UtahMedical food practice affects our practice in several ways. First, and foremost, our desire to bring the best possible care and ...
Claire, Age 12
Phenylketonuria (PKU) · UtahAnnual cost: $2400
My insurance company recently denied coverage for my daughter’s formula to treat her PKU. They said she can only have formula ...
Owen
Phenylketonuria (PKU) · UtahAnnual cost: $36000
Medical nutrition coverage would make an enormous difference to our entire family. We spent years in school to provide a good living ...