Sebastian, Age 25
EOSINOPHILIC DISORDERS · PennsylvaniaMedicare always denying coverage, constant. Medicare is very poor. EOB’s need improvements. I have a son that needs medical ...
Leonard, Age 3
Pennsylvania · Phenylketonuria (PKU)Annual cost: $4800
I have two sons and only Leo has PKU. We maintain a low protein diet for Leo, but due to the high cost of low protein medical foods, ...
Elsie, Nearly 2
FPIES · PennsylvaniaPrior to switching to my husbands employer benefits we paid $125 per month out of pocket for our daughters formula. When my husband ...
Hattie (20 months) and Maxine (6 months)
Pennsylvania · Phenylketonuria (PKU)Annual cost: $7200
We have two beautiful daughters, Hattie (20 months old) and Maxine (6 months old) who were diagnosed with PKU at birth. Because of ...
So far Mark's medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never know year after year if it will be or not and January is always stressful not knowing if will be or not.
Mark, Age 61
PennsylvaniaAnnual cost: $7500
So far Mark’s medical nutrition has been covered after the out of pocket maximum is met (this year it is $7,450). But we never ...
Ellie
Homocystinuria · PennsylvaniaAnnual cost: $2400
Food is the most important thing to any mother who has an infant. While most mothers who have a two week old are just making sure they ...
Kennedy, Age 9 months
Pennsylvania · Phenylketonuria (PKU)Kennedy was diagnosed with PKU at 5 days old. Left untreated this disorder can lead to serious brain damage. While we are very ...
MSUD powder is expensive - $2,775.00 for about 2 1/2 months of powder and is the mainstay of the diet for an MSUD person. Insurance always denies payment for other protein supplements such as valine and isoleucine which are recommended by the doctor.
Jeff
Maple syrup urine disease · PennsylvaniaAnnual cost: $2700
We purchase medical insurance from employer. Employer is self insured so not subject to the Pennsylvania Medical Foods Act. MSUD ...