Liza
Oregon · Phenylketonuria (PKU)Annual cost: $8400
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
Because our employer plan is self-funded, and we have no other plan options through the company, I have no coverage for even formula ...
When I moved to the West Coast by myself in 2014, I had to learn everything on my own like finding a clinic and handling coverage. I ...
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
I was diagnosed with Homocystineuria at age 3, (1974) when I rubbed Trisodium Phosphate (paint Thinner) into my eyes. They originally ...
Our family is very grateful that Laila’s PKU was discovered with newborn screening. Once we were able to overcome the fear and ...