Kayla
Oregon · Phenylketonuria (PKU)When I moved to the West Coast by myself in 2014, I had to learn everything on my own like finding a clinic and handling coverage. I ...
April, Age 17
EOSINOPHILIC DISORDERS · OregonAnnual cost: $12000
My daughter has EoE allergies and IgE allergies and is already a tiny girl. At 17 yrs she only weighs 100lb. We are still trying to ...
Joanna
Homocystinuria · OregonI was diagnosed with Homocystineuria at age 3, (1974) when I rubbed Trisodium Phosphate (paint Thinner) into my eyes. They originally ...
Laila, Age 12
Oregon · Phenylketonuria (PKU)Annual cost: $7200
Our family is very grateful that Laila’s PKU was discovered with newborn screening. Once we were able to overcome the fear and ...