When my daughter Sienna was 3 months old she was diagnosed with a rare metabolic disease called mma-cblc. This disease prevents her ...
Insurance won't cover my son's formula unless he's tube-fed.
The Medical Nutrition Equity Act would mean my 7 year old son could get proper nutrition he needs. He is currently 45lbs at 7.5 years ...
My FPIES son could only tolerate 1 food (Quinoa) for 3 years without projectile vomiting or having hospitalization level diarrhea. We ...
While we are very fortunate to have insurance that can help us with the costs, there is still a great financial strain associated with ...
Hi, I’m Pat and this is my son, Isaac, and husband/caregiver, David. Isaac is high functioning Autistic. I’m Type 2 ...
My mother has worked as many as 5 jobs concurrently to maintain employer-provided insurance and has CONSTANTLY fought to keep me on a ...
This coverage would take away added stress on our family and thousands of others. I have the means to afford insurance, but it does ...
Medical coverage for our family will mean less time fighting the insurance for coverage. They decide when and how they are going to ...
I am a new mom and PKU adult, I rely on my medical food to provide myself and my son the necessary nutrition for everyday life. All ...
It would end the never ending anxiety of worrying about whether I can feed my son who has Eosinophilic esophagitis. My insurance will ...
Earlier this year we took custody of our grandson Anthony. He was diagnosed after birth with PKU. He has lived with us since birth, ...
When my son, Draegen, was younger, he was on Medicaid. It covered his formula, but only a very specific kind. He ended up burnt out on ...
As all parents who experience it, we were overwhelmed once we got the call, at 5 days of age, that our daughter Maeve had been ...
I have avoided purchasing the medical food I needed because we can’t afford the food.
I have avoided purchasing the medical food I needed because we can’t afford the food. I make do with limiting myself to what I can ...
These medical foods and formulas are not “optional” or “nice to have” for those of us with PKU andsimilar ...
For now while she is a baby our insurance covers some of her formula, but none of her medically necessary supplements and none of the ...