Yazmin, Age 2
Arizona · Phenylketonuria (PKU)Annual cost: $2400
Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires ...
Yazmin was four days old when she was diagnosed with mild PKU. She’s been allowed most things except for meat, she still requires ...
Our journey begin in January 2018. Owen was 11 months old and went into anaphylactic shock due to peanut butter. This was just the tip ...
Our family is unique, in that I have PKU as well as our four adopted sons. With no guarantee of insurance coverage, I fear that my ...
Having medical coverage for formula and medical foods would be an enormous relief. Even though Owen is only 12, I have worried since ...
On top of the cost of formula, I have to buy specialty foods amounting to about $200 per month plus regular grocery store items for my son, fresh fruits and vegetables. Plus groceries for rest of family. My son will then age out of coverage per current policies. I worry about what will happen, will he have an occupation that will allow him to manage the cost?
Having better coverage will will certainly lower our costs. To have to pay escalating insurance premiums plus the cost of formula and ...
My husband and I opted to pay more out of pocket each month, for our portion of the monthly insurance premium to assure that Addison ...