Brooks, Age 9 monhts
FPIES · IllinoisAnnual cost: $600
My son was hospitalized at 7 weeks old due to a reaction. At the time it was determined the common cold sent him into near shock. He ...
Annual cost: $600
Annual cost: $600
Denver, Age 12
Illinois · Phenylketonuria (PKU)Having coverage for the food and formula would be absolutely amazing for our family. I would be able to make a career move making more ...
Evan, Age 8
EOSINOPHILIC DISORDERS · IllinoisAnnual cost: $7200
Our 8 yr old has been on EleCare/hypoallergenic formula since he was 9 months old. His first 3 years of life, he went from no safe ...
Jonathan (4) and Julia (5)
Illinois · Phenylketonuria (PKU)Annual cost: $12000
We have 2 kids with PKU, so having coverage for medical nutrition would mean the world to us. My husband switched jobs for better ...
Nicole
EOSINOPHILIC GASTROINTESTINAL DISORDER (EGID) · IllinoisAnnual cost: $5400
I am a full time lawyer working 60-70 hour weeks with two little children at home (3 yo and 12 months). I travel for work and often ...
Leo, Age 2
Illinois · Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteinsAnnual cost: $9216
My son began drinking Neocate junior at 12 months. It was not covered by our insurance. All formula is excluded from out plan because ...
Joseph
Homocystinuria · IllinoisAnnual cost: $4800
Better coverage for my son would alleviate the concerns about not being able to afford the medicine he needs .
Insurance info: Our ...
Elliot, Age 2
Illinois · Phenylketonuria (PKU)Annual cost: $4200
Elliot was diagnosed with PKU at 6 days old. He is a happy, energetic and loving 2 year old. We are fortunate enough to have formula ...
Asher, 4
Illinois · Phenylketonuria (PKU)Annual cost: $1800
Asher is my happy, smart, funny, rambunctious four year old. He loves to play with tractors, his sister, swim, and eat! He loves ...
Renee
Illinois · Phenylketonuria (PKU)Annual cost: $3000
My name is Renee. I am recently married in August 2017. I am currently on pre-con trying for our first child. My levels have been ...
Danae
Homocystinuria · IllinoisAnnual cost: $18000
Homocystinuria comes with the risk of heart attacks and strokes when not on diet. In college it was impossible to afford follow the ...
Denver, Age 10
Illinois · Phenylketonuria (PKU)My son Denver appears to be a normal ordinary 10 year old boy until he wants something to eat, gets sick, or his PHE levels are too ...
My pasta costs almost 10 times more than pasta bought at a local grocery store. My medical food should be looked at as medicine, not food. It is a requirement, not a choice.
Kelly
Illinois · Phenylketonuria (PKU)Annual cost: $15000
Having medical nutrition covered by the government would make life a lot more simple. I would have less stress and more peace of mind ...
Jane’s formula cost out of pocket for EEN was approximately $300 per month. Her team of health care providers attempted to obtain insurance coverage but was denied even after appeals were attempted.
Jane, Age 7
CROHN'S · IllinoisAnnual cost: $3960
Jane is a happy and energetic 7-year-old child who lives with her parents and two siblings in Chicago, IL. She was diagnosed with ...
Diego, Age 9
Illinois · Medical or Surgical Condition of Malabsorption · SBSAnnual cost: $12000
Diego is a happy and thriving 9-year-old boy from Chicago, IL with a history of intestinal atresia. This means that part of his ...
Riley
Illinois · Phenylketonuria (PKU)Annual cost: $9600
My 3 year old daughter has classical PKU, with coverage for medical nutrition she would be able to eat more food instead of being ...