Kerri
New Jersey · Phenylketonuria (PKU)I was born with CPKU as well as my twin sister. We will die with CPKU too unfortunately. It isn’t anything you have a chance of ...
My employer, though great for everything else, is self-Insured. Due to this fact they are not required to cover my 13 year old’s formula.
Julian, Age 13
Immunoglobulin E & non-Immunoglobulin E-mediated allergies to food proteins · New JerseyAnnual cost: $9600
Coverage would mean that i could really offer my son enough nutrition per day instead of rationing. He does eat about 6 foods, but ...
Grace, Age 11
New Jersey · Phenylketonuria (PKU)Annual cost: $1440
We have three beautiful children, two of which have PKU. We spend over $120 a month on medical formula, foods, and medication for PKU. ...
Cooper, 10 months
New Jersey · Phenylketonuria (PKU)We are lucky that my husband works for Google and has some of best health Insurance you can get but most are not so lucky. We had to ...
Brayden, 5 months
New Jersey · Ornithine transcarbamlyase deficiencyAnnual cost: $9600
Having medical coverage would mean we could have more of a variety of foods for my son instead of relying on the same foods since we ...
It is extremely difficult to provide my child with enough food to keep him healthy by keeping his blood phenylalanine levels at recommended levels and also keep him from being hungry.
Evan, Age 13
New Jersey · Phenylketonuria (PKU)Annual cost: $3600
We are a low income family. I am a single mother and I provide school with low protein lunches 5 days a week. It is extremely ...
Isabel
New Jersey · Phenylketonuria (PKU)Annual cost: $3600
I have two daughters. Only the younger one has PKU. We struggle to find foods that Isabel can eat. Medical foods are incredibly ...