Cody, Age 6
EOSINOPHILIC DISORDERS · OhioCoverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Clayton, Age 4
Ohio · Phenylketonuria (PKU)Annual cost: $5040
Having the medical nutrition covered by our insurance would grealty imporve the options and the cost of the food that Clayton would ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Dylan, Age 5
EOSINOPHILIC DISORDERS · OhioAnnual cost: $18000
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
Emily, Age 18
Ohio · Phenylketonuria (PKU)Annual cost: $2400
My name is Emily and I am 18 years old with Phenylketonuria. I would have to admit that sticking to a strict diet of 256 Phe a day is ...
Jalen, Age 5
Ohio · Phenylketonuria (PKU)Annual cost: $3600
My state gives us formula covered which is the biggest blessing but my daughter is just now getting ready to start foods. I am a ...
Lisa
Ohio · Phenylketonuria (PKU)Annual cost: $30000
Our state has a state funded program for the formula. The Kuvan my daughter takes we are getting assistance through NORD (charity ...
Christiana, Age 11
Ohio · Phenylketonuria (PKU)We are fortunate that in the State of Ohio our daughter’s medical formula is covered. Because she is a responder to Kuvan, we ...
Zoey, Age 1
Ohio · Phenylketonuria (PKU)Annual cost: $3600
We would be absolutely grateful if our daughter Zoey’s Medicaid insurance would cover her medical food, not just her formula. I ...
Nia, Age 3
Maple syrup urine disease · OhioAnnual cost: $3600
Insurance covers my daughters medical formula but doesn’t cover her medical foods. If my daughters medical foods were covered it ...