My 2 year old son Ronan has FPIES. He was born healthy but quickly lost to much weight within 2 days after being born and was failure ...
Colton is almost 7 years old. He was born at 30 weeks and lost 2/3 of his small bowel due to a mid-gut volvulus. He has been on an ...
Coverage for medical nutrition is dictating our decisions on treatment. We cannot afford to pay for the formula so are delaying ...
Having the medical nutrition covered by our insurance would grealty imporve the options and the cost of the food that Clayton would ...
Told we were “too rich” to qualify for medical foods coverage but if we liquidated all our assets we could qualify for limited help.
Diagnosed at 14 months. Husband was unemployed at the time, I was working. Went through every agency in Ohio for assistance on cost. ...
My name is Emily and I am 18 years old with Phenylketonuria. I would have to admit that sticking to a strict diet of 256 Phe a day is ...
My state gives us formula covered which is the biggest blessing but my daughter is just now getting ready to start foods. I am a ...
Our state has a state funded program for the formula. The Kuvan my daughter takes we are getting assistance through NORD (charity ...
We are fortunate that in the State of Ohio our daughter’s medical formula is covered. Because she is a responder to Kuvan, we ...
We would be absolutely grateful if our daughter Zoey’s Medicaid insurance would cover her medical food, not just her formula. I ...
Insurance covers my daughters medical formula but doesn’t cover her medical foods. If my daughters medical foods were covered it ...