Teresa
North Carolina · Phenylketonuria (PKU)Annual cost: $1200
My name is Teresa Boyette I live in Kinston NC I was born overseas where nb knew bout pku tills American soldier discovered it.i ...
Annual cost: $1200
Annual cost: $1200
Melissa
North Carolina · Phenylketonuria (PKU)Annual cost: $3600
Having medical nutrition coverage would mean that I get to live my life without worrying. I’ve had to move to different states ...
Tyler, Age 7
EOSINOPHILIC DISORDERS · North CarolinaAnnual cost: $14400
Tyler began getting sick at age 4 eating normal food. We went through three large healthcare institutions in NC where we live for ...
Lyndsee, Age 13
EOSINOPHILIC DISORDERS · North CarolinaAnnual cost: $20400
My daughter, Lyndsee, was diagnosed in January 2016 with a rare disease, eosinophilic esophagitis. Therefore, she has to live on a ...
Oliver, 10 months
North Carolina · Phenylketonuria (PKU)Annual cost: $4800
My son was a week old when we got the news that he has PKU. I had no clue what this was and didn’t realize just how serious it ...
I am currently a foster mom to a 2 year old with PKU. We live in the state of NC where medical food is not covered. His food is very expensive & without coverage, it is nearly impossible to buy.
Gian, Age 2
North Carolina · Phenylketonuria (PKU)Annual cost: $4800
I am currently a foster mom to a 2 year old with PKU. We live in the state of NC where medical food is not covered. His food is very ...
The metabolic disorder itself is such a challenge in learning and dealing with and then to have to worry about the funds to get the food, formula and medical care she needs is another level of added stress.
Audrina, Age 8
North Carolina · Phenylketonuria (PKU)My daughter was diagnosed with PKU at one week old. The moment that doctor called us it changed our lives forever. The metabolic ...